Minister of Health & Family Welfare - Latest News Update, Information, Photos & Videos on Minister of Health & Family Welfare at Lokmat Times

Aurangabad, Feb 4:The MP, Syed Imtiaz Jaleel, has sought a direct response on the need to provide timely and sustainable support for patients diagnosed with life-threatening 'rare diseases' like Lysosomal Storage Disorders (LSDs) from the union Ministry of Health & Family Welfare (MoHFW) under Rule 377 of the Rules of Procedure and Conduct of Business in the lower house.The MP stressed that the provision of one-time financial support up to Rs 15 lakh under Rashtriya Arogya Nidhi (RAN) by the Central Government for treatment of Group 3 patients is highly inadequate and of little use to all those patients, especially children, whose life-threatening medical condition requires repeated infusion therapy.“ In Maharashtra 8 children had lost their lives since the earlier National Policy on Treatment for Rare Diseases 2017 has been kept in abeyance, and the newly revised policy still awaiting finalisation and notification. As guaranteed under Article 21 of the Indian Constitution, the union Government should provide all necessary support to these patients diagnosed with Group 3 disorders,” stated the notice issued under Rule 377 by the MP.The MP sought response as, despite several requests and petitions filed by patients and their families, the government has shown indifferent attitude towards them and had not granted funds as support for treatment, so far. Earlier, the MP, Imtiaz Jaleel, had written to union Minister of Health & Family Welfare, Dr Harsh Vardhan.

Home

City

Latest News

Cricket

LT Premium

National

International

Maharashtra

Opinions

Chhatrapati Sambhajinagar

Nagpur

Entertainment

Photos

Business

Technology

Sports

Lifestyle

Social Viral

Lokmat Games

Health

Lok Sabha Election 2024

Ram Navami 2024

Dubai Rains

Maharashtra Lok Sabha Election

IPL 2024

Salman Khan

Minister Of Health & Family WelfareFOLLOW

Minister of health & family welfare, Latest News

Aurangabad :MP moves Rule 377 to seek direct responses on rare diseases

Aurangabad, Feb 4: The MP, Syed Imtiaz Jaleel, has sought a direct response on the need to provide timely ... ...